I have a ton of things to post from the past week, but I just got an email from a friend, and my reply turned into a rundown of my day (without even mentioning all the unpacking I had to do). I've been wanting to post, but I've been tired. Here's why:
Why are you going to court? I sure hope everything's OK!
The State of Alabama denied her disability determination. In other words, they say she's not disabled, and doesn't qualify for disability benefits. As of right now, we have to go to court on Sept 14th in Montgomery to fight for her disability. That means I have to have a lawyer, med records, testing, yadda yadda yadda. It's a lot of work (and $$$) just to prove what's true.
Now I know what people go through when they're falsely accused.
There's a chance we can forego the entire hearing if the judge will agree to look over the med records and decide that the evidence is strong enough. Shane [our lawyer] thinks we can't lose. But I still don't want to take out a loan just to make them realize it. It just doesn't seem fair. And I told the lawyer in Montgomery (for the State) so. I don't see any reason why we have to hire Shane, go all the way down there, and spend thousands of dollars just to give them some paperwork to prove our point. We'll see if the judge will be benevalent. I'm praying that God will open his eyes to the severity of her condition. That it's NOT just "epilepsy".
By the way, if we win the case---we don't get any money. Just a lifetime benefit that will eventually be worth the cost, but not anytime soon. It would probably take 5 years to be worth what it'll cost us to go to court!
I sure hope God sees fit to not make us go through this. It's been a strain.
As it is, we got denied her disabilty check today (totally different State department). She qualifies disability-wise, but you can't make too much money in order to get the monthly check.
We make 60-something dollars too much a month. How's that for a let-down?
That check would've been nice. It would help pay for the van that we had to get because of her needs. Not to mention the prescription co-pays and doctor visit co-pays. Nevermind when she's hospitalized in August for some testing. THAT co-pay should be fun (feel the sarcasm?)
Sorry to sound like I'm dumping. It's been a crazy day. I'm not all that upset. I alway know in the back of my brain that God will work it all out. I just get kinda frustrated with the system sometimes. Like I have nothing better to do than to fight for her rights. It's a lot of work. A lot of phone calls, a lot of paperwork, a lot of fighting with people to just do their job and to realize that I didn't ASK to have a sick child. Sheesh.
On the brighter side, Make-A-Wish called today and they should be arranging to come over some time this week.....very good!
And as I'm writing this, Michaela's having a seizure.....
the irony of it all